Josh Groban - You Raise Me Up
Good Morning and welcome to Sunday Morning in my little corner of the world where it is much cooler and there has been soft, beautiful and gentle rain overnight and a gentle breeze is blowing. I had a very restless night and have been up and down for hours - perhaps a nap during the afternoon with be the order of the day.
I have hot steaming coffee and the birds are singing and my cat is driving me crazy - she can't make her mind up as to whether she wants in or out - this morning I am calling her "Hokey Pokey".
My weekend is taking a very different shape from the one I planned but change is sometimes good - yesterday was a full day with shopping, friend for lunch and a cryptic crossword puzzle and then a trip to the airport with one of my girls who is off to Perth for two weeks for conferences - they certainly belong to the Jet Set.
I discovered an error in my Internet banking late yesterday - I had paid $830 instead of $83 for my RAA (Automobile Association for road side service) so I have some negotiating to do with them on Monday morning - but having done this troubled me and made me very aware of how different life is for me.
During my days pre-transplant I went through episodes of Encephalopathy which can be severely damaging to the brain.
Fortunately I recovered but there is some residual damage and there are times when I transpose numbers and letters and I am going to have to take much more care with my banking. Hopefully this issue can be resolved easily with the RAA when I contact them on Monday morning.
I was tired, upset and very wobbly after this discovery and it certainly made me think about my life and the changes and yet how blessed I am.
Life is changed - I have a huge scar - but that doesn't worry me - a mark of victory. I have lots of little scars gathered on the journey - all worn with pride and honour.
Stevens Johnson Syndrome damaged my skin on many areas - but although not decorative it is functional and my face wasn't damaged which makes life easier to handle. There are wrinkles and grey hairs too - all part of the journey of my life. I have to be careful to avoid infections etc - but it isn't a big price to pay.
I have to take lots of medications and attend lots of appointments which I do without complaint because over the big picture of all of this I am ALIVE and the quality of my life is very good. These issues and the fact that I have to wear a Medic Alert bracelet telling of my allergies pale into insignificance when balanced in the scale.
I LIVE BECAUSE OF MY LIVER DONOR and I am grateful to him each and every moment of each and every day.
This was just a wobble along the journey of my life and having "made it through the rain" I now look forward to living my life in peace and harmony, accepting the changes and being able to find my way. This I do with loving and caring support from family and friends and others who have been "rained on too".
Thank you all for your support - look closely and see the real me with all my faults and foibles and know that under this damaged skin beats a very caring heart.
Thanks for visiting and indeed you do "Raise me Up" - I have wept a lot but I know those tears had to come and am thankful for them and the fact that they do indeed wash away pain.
"When I am down and, oh, my soul's so weary
And troubles come and my heart burdened be
And I am still, I wait here in the silence
Until you come and sit awhile with me
You raise me up so I can stand on mountains
You raise me up to walk on stormy seas
I am strong when I am on your shoulders
You raise me up to more than I can be
You raise me up so I can stand on mountains
You raise me up to walk on stormy seas
I am strong when I am on your shoulders
You raise me up to more than I can be"
You raise me up so I can stand on mountains
You raise me up to walk on stormy seas
I am strong when I am on your shoulders
You raise me up to more than I can be
You raise me up so I can stand on mountains
You raise me up to walk on stormy seas
I am strong when I am on your shoulders
You raise me up to more than I can be
You raise me up to more than I can be
Love and hugs
Linda
http://www.youtube.com/watch?v=B56UjiLuWkk
I'm Alive - Kevin Chesney and Dave Matthews
This is my Anthem - my theme song and I listen to it often - I hope you can enjoy it too.
1 comment:
Linda, how beautiful. I too love this song. In fact, I used this song to produce a video of my vacation to Hawaii several years ago. Yes, I certainly do understand "exactly" what you mean! I too have residual effects of the HE, especially with word finding and spelling. It would be interesting to poll the other members of the group to see if this is something "normal" across transplantees. Just a thought. But yes, it is very upsetting.
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